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New Family Group starting today & lots more...

Our New Family Group at Pirates and Princesses is starting today!

Come and join us at our new family group being held at Pirates and Princesses today from 5pm-7pm. This Family Group will be running on the last Monday of the month. We look forward to seeing you there!

Funky Friday News...

Unfortunately Funky Friday Disco will not be on in February due to difficulty securing the venue. Hopefully it will be back on, on Friday 2nd March. Please look out for further details next month on the Facebook page (Funky Friday at The Red House- Disability Disco)... sorry for any inconvenience caused. Thanks from the Funky Friday Team.

Blue Badge Scheme: Consultation on Eligibility

The Blue Badge scheme plays a vital role in allowing 2.4 million disabled people in England to maintain their independence through special national parking concessions. Without the scheme, 75% of badge holders have said that they would go out less often. The government believes that the Blue Badge scheme should not discriminate in principle between physical and non-physical disabilities. The current rules embrace all conditions, physical or otherwise, but it has become clear that the regulations and guidance are not clearly understood by local authorities. People with hidden disabilities may be finding it difficult to access badges, even though their condition causes them very significant difficulties when undertaking a journey.

The consultation period began on 21 January 2018 and will run until 18 March 2018. Please ensure that your response reaches them before the closing date.


Sensory Processing Resource

The following link provides information, resources, and case studies around Sensory Processing. http://sensory-processing.middletownautism.com/​

****Places Still Available**** CAMHS Workshop (0-25yrs) - Have your Say - Learning Disability as primary need + associated conditions on Wednesday 14th February 2018

This workshop is open to parent carers and practitioners from a range of services who support children and young people with Special Educational Needs and Disabilities. It will provide an opportunity to hear about the work done to date, the challenges to be overcome and to jointly develop an effective service. As some of you may be aware the new 0-25years service is now called Bee-U and this will be discussed as part of workshop.

This workshop will cover Learning Disability Pathway - young people using this pathway will have a learning disability as their primary need, but may also have other associated conditions such as ASC, ADHD and medical needs. They may be referred to the service due to behaviour that challenges or other mental health issues

Another workshop for Autism Spectrum Conditions, ADHD and Neurodevelopment conditions is running in January.

Workshop will run 9.30am (refreshments) and start at 10am and run till 2.30pm. Lunch will be available (please advise any dietary requirements). Agenda will follow. Parking is Free in main Theatre Car Park. Entrance to venue is via stairs or a lift is available. This event is jointly organised with PODS Parent/Carer Forum (for families with Disabled Children), Parent and Carer Council (Shropshire), Telford and Wrekin CCG and Shropshire CCG.

To book your place, please click on the following link: https://www.eventbrite.co.uk/e/camhs-workshop-0-25yrs-have-your-say-learning-disability-as-primary-need-associated-conditions-tickets-41245291778

Weekly Update from Jayne Stevens (Participation Co-ordinator)...​

Good Morning - what a horrible dreary start to the week (and I thought spring was on the way when I saw a couple of bulbs flowering yesterday!)... Last week was overtaken by CAMHS and workshops with parent carers and a far few professionals - discussing the way forward and ensuring that your voice has been heard. I now need to write up all the notes from the themes that we focussed on: Referrals, Assessment, Diagnosis and Post assessment/diagnosis support - we shared our experiences, what we want the service to look like, the outcomes for our children and young people and families and the important bit - What Happens Next! We have another workshop on 14th February for families who have a child/young person with Learning Disability as their main diagnosis. If you've not booked on already there are a few spaces left (check out our events). In between the main focus that was CAMHS, we attended a Trustees Meeting to provide an update on our key messages from our family groups, parent rep activity and key workstreams with an update to ensure we remain on track for outcomes of course.

I also attended the Carers Voice update meeting and really pleased that Parent Carer Voice is been recognised locally alongside wider carer voices including young carers - this will lead onto workshops covering Information, Provision Pathways and Mental Health/Resilience so watch this space for these areas of key work. I attended my first Family Group of the year on Friday at Dawley Town Hall - a great venue and we had lots of families attending which was great to see - sharing information about the CAMHS workshop and also discussing the upcoming SEND Workshop. No trip to Dawley would be complete without a visit to Crystal's Cupcakes which will now to become a Dawley Family Group Tradition!

Come and join us at our Family Groups...

Monday 29th January 2018: Your Voice + Family Resources from 5pm-7pm at Pirates & Princesses, Unit 17, Cedar Court, Halesfield 17, Telford, TF7 4PF.  

Monday 5th February 2018: Your Voice + Family Resources from 10am-12pm at Admaston House, Admaston, Telford, TF5 0BN.

Thursday 8th February 2018: Your Voice + Family Resources from 7pm-9pm at Elephant and Castle Pub, Dawley, Telford, TF4 2ET.

Wednesday 21st February 2018: Your Voice + Family Resouces from 9.30am–11.30am at Hollinswood Community Centre, 7 Downemead, Telford, TF3 2EW.

Thank you for reading our latest bulletin.

Kerrie Seagrave

Project Administrator on behalf of PODS Parent Carer Forum.

We hope you enjoyed reading our latest e-bulletin - we hope you continue to find it useful. If you have any suggestions to make it better feel free to let me know. 

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