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Cerebra Workshop, Gluten Free Food Prescribing Survey & More...

Cerebra Workshop - Accessing Public Services on Friday 11th May

This workshop is run by Cerebra to support disabled people and carers as well as their famlies and advisers who are encountering difficulties in relation to the provision of health, social care or education support services. By the end of the workshop you should be able to:

- Consider commonly occurring problems that parents face in accessing services

- Recognise different levels of "dispute"

- Identify and use the problem-solving approaches within the Toolkit

The session is not a legal advice Worksop and facilitate will not be able to give opinions on legal issues although can signpost for more detailed legal support. The workshop is free to attend and lunch and refreshments will be provided - please advise any dietary reqs.


Cerebra's Latest Newsflash

In Cerebra's lastest Newsflash they explain their Sleep Research Project and how you can get the support you need to help your child sleep. Also the latest, What’s the Evidence summaries, including one on interventions for improving the social skills of young adults with autism. Click on the following link to find out more: http://www.cerebra.org.uk/?wysija-page=1&controller=email&action=view&email_id=76&wysijap=subscriptions&user_id=5789​

Gluten Free Food Prescribing Survey

NHS Telford & Wrekin Clinical Commissioning Group (CCG) are proposing that gluten free foods will no longer be available on NHS prescriptions for patients of any age.  The CCG is actively seeking the views of the wider public in addition to people who currently receive prescriptions for gluten free foods.  This is because the decisions that the CCG must make about how to spend its budget has implications for all residents of Telford and Wrekin.

The period of engagement around gluten-free food prescribing starts today and will continue until 25th May 2018.  The following link gives you more information, and the survey for you to complete: https://www.telfordccg.nhs.uk/get-involved/engagement 

The Transition Event Midlands 2018

The Transition Event Midlands 2018 brings together practitioners, parents and leading experts to support young people with disabilities or mental health needs through transition. It will be held on 17th May at the Ricoh Arena in Coventry. The one-day conference and exhibition enables delegates to debate the future options for young people and help find new and existing pathways to their future and independence. Focusing on all main transition topics, including EHCPs; education; housing; care and support; and employment, the conference is chaired by Caroline Bennett, Associate Director for Social Care at the Council for Disabled Children, a leading champion for young disabled adults’ transition and their future choices.

For further information on the event and to register, please go to: https://www.myfamilyourneeds.co.uk/event/transition-event-midlands-2018/ 

The Albrighton Trust Plant Sale and Fishing Equipment Sale Day - Sunday 13th May from 11am to 3pm

Hosted by Phil Allen, BBC Radio Shropshire gardening expert and head gardener at Apley Walled Garden.  Book Stall, BBQ and Refreshments are also available during the day. They are open for fishing to book a fishing peg please contact us on 01902 372441 or email moat@albrightontrust.org.uk

Dimensions Autism Friendly Screenings - May 2018

For Dimensions May Autism Friendly Screenings, please click on the following link: http://s1298384207.t.en25.com/e/es?s=1298384207&e=2378&elqTrackId=B1F0B909CCF90C71B9C490C37BFE6647&elq=e00fc0e1d3554f78b1fd46066f8c751e&elqaid=166&elqat=1​

Funk Friday - Friday 4th May 2018

Branches in the Park on Sunday 6th May 2018 

Branches are hosting a Mental Health Awareness Festival at Telford Town Park. There will be lots of activites and events for families, the Mayor of Telford Cllr Stephen Reynolds will also be attending. They will have Savannah UK headlining and other live bands playing. There will also be inflatables, rides, food vendors and arts and crafts stalls to keep the children amused!

This event is part of the Telford50 celebrations and being supported by Telford and Wrekin Council, to find out more, click the follwing link: https://www.facebook.com/events/1668804173214482/​​

Weekly Update from Jayne Stevens (Participation Co-ordinator)...​

Morning everyone...Just a quick update today as prepping for the CAMHS Stakeholder meeting later this morning! Last Monday I was invited to a workshop ran by Steve Broach (Barrister Monckton Chambers) alongside 2 of our parent reps. This knowledge will help us to understand the law when it comes to matters including social care and education and also looking at continuing health care criteria. I'll be writing some notes up about it when I get an hour or two spare...

Tuesday and Wednesday I was co-training on the Face 2 Face Scheme and then onto meeting with Trustees on Wednesday evening. On Thursday we met with parent reps and fundraising team to discuss our events for the year and most importantly the Picnic in the Park (Admaston) on 6th August - get it in your diaries quick - lots of great stuff planned . . . We've met with Rachel from the EAST programme to talk about opportunities for young people with LD, Autism or Aspergers and support to get into the job market - whilst there's plenty of support out there and a specific funding from the Proof of Concept project, there is much work still to be done with Telford employers. With my other hat on as a governor I attended a governor workshop, whilst there met some SENCO's and shared PODS information - spreading the word and knowledge that disability doesn't just relate to just 'physical needs'! We had a family group in Dawley on Friday but missed out on cupcakes - will save these for next time I promise :) 

We've also completed reporting to the DfE for our Participation Grant and we've applied for the grant for next year which always results in a 'thank goodness that's done' sigh....

As well as the CAMHS meeting today, we have Pirates & Princesses family group tonight, more F2F training, parent support groups in schools, short breaks, a BIG Lottery workshop and another Mentoring Course session on Friday.

Despite all this going on, it's increasingly important that we continue to share the wider parent carer voice - if you have anything to share, to tell me or ask me about - please do so - via inbox on facebook or via email to jayne@podstelford.org

Thanks for reading and hoping everyone has a good week.

Come and join us at our Family Groups...

Monday 30th April 2018: Your Voice + Family Resources from 5pm-7pm at Pirates and Princesses, Unit 17, Cedar Court, Halesfield 17, Telford, TF7 4PF

Thursday 10th May 2018: Your Voice + Family Resources from 7pm–9pm at Elephant and Castle Pub, Dawley, Telford, TF4 2ET
Free car parking: Station Road Car Park (Entrance just after Royal British Legion. Postcode TF4 2NW)

Monday 14th May 2018: Your Voice + Family Resources from 10am–12pm at Admaston House, Admaston,Telford, TF5 0BN
Free car parking on site.

Wednesday 16th May 2018: Your Voice + Family Resources from 9.30am-11.30am at Hollinswood Community Centre, 7 Downemead, Telford, TF3 2EW
Free car parking available at front of shops.

Thank you for reading our latest bulletin.

Kerrie Seagrave

Project Administrator on behalf of PODS Parent Carer Forum.

We hope you enjoyed reading our latest e-bulletin - we hope you continue to find it useful. If you have any suggestions to make it better feel free to let me know. 

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